Resources

Watch Webinar

Download the Slides from the webinar, ‘Understanding the Genetic Puzzle of Wilms Tumor’ helow:

Wilms-Tumor-and-Genetics.pptx.pdf

Understanding the Genetic Puzzle of Wilms Tumor

Click Here

Genetics Overview

Click Here

Genetic Counselors

Click Here

Genetic Testing

Click Here

Genes

Click Here

DNA & RNA

Click Here

Transcription

Click Here

Protein Synthesis

Click Here

Germline vs. Somatic Gene

Click Here

Two-Hit Hypothesis

Click Here

Red Flags for WT Genetic Syndromes

Click Here

Red Flags for WT Genetic Syndromes

Click Here

Genetic Testing Decision

Click Here

Conditions and Genes

Wilms-Tumor-and-Genetics.pptx.pdf

Click Here

Conditions and Genes

Wilms-Tumor-and-Genetics.pptx.pdf

Click Here

Conditions and Genes

Wilms-Tumor-and-Genetics.pptx.pdf

Click Here

Case Examples

Click Here

Case Examples

Click Here

Case Examples

Click Here

Genetic Testing Strategies

Click Here

Methylation Testing on Tumor

Click Here

New Tech & RNA Sequencing

Click Here

Future Directions

Click Here

Genetic Testing Strategy

Click Here

Contact Joyce Turner Here

Click Here

Watch Webinar

Our Amazing Kidneys

Learn more on the function and structure of our kidneys!

Download Our-Amazing-Kidneys-.pdf today!

Miriam F Weiss, MD, retired nephrologist and Wilms’ grandmother

Sharing The Experience: The Genetic Predisposition Clinic

by ElevateAdmin | March 5, 2025 | Advocacy, Research, Wilms Workgroup | 0 Comments

"Ralphie’s nine-year-old sister was not identified as having a cancer predisposition syndrome until after she had been diagnosed with cancer, Wilms tumor, twice. By that time cancer filled her little body, displacing her liver, traveling throughout her abdomen,...

Ewings Sarcoma Survivor’s Mom Shares Why Blood Donations Matter

by ElevateAdmin | January 12, 2025 | Elevate News, Get involved/Volunteer | 0 Comments

"I started donating blood when I was in high school, in a probably ill-advised scheme to work past my fear of needles." - Aimee Formo Aimee, an incredibly well-versed and passionate childhood cancer mom and advocate currently residing in Indiana, shares with...

Call to Action in 2025

by ElevateAdmin | January 2, 2025 | Advocacy, Federal, Research | 0 Comments

"One of the most devastating things about this legislative mess is that some of these bills in this package had no fiscal attached, meaning they weren't going to cost taxpayers a dime!" - Robyn Spoon, Elevate CEO & FounderHere is the site that we...

ELEVATE at the FDA

by ElevateAdmin | October 25, 2024 | Advocacy, Elevate News, Federal, Get involved/Volunteer, Research, State | 0 Comments

" "Making more drugs available to kids with cancer means solving a million small problems. Yesterday’s event provided a necessary opportunity to bring more and more of those problems to light. If we can identify the problems, name the problems, then we can...

Tatum and Maisie Moving Mountains

by ElevateAdmin | September 11, 2024 | Elevate News, Fundraisers, Get involved/Volunteer | 0 Comments

"The challenges of being a pediatric cancer family are innumerable. Every time you think you’ve found the worst thing, something else rears its ugly head. These past few weeks we’ve witnessed a hefty serving of that humanity, led by two young girls, Tatum Pillor and...

Outwork the Noise

by ElevateAdmin | September 4, 2024 | Advocacy, Elevate News, Get involved/Volunteer | 0 Comments

Don’t listen to those voices. Let your hard work, sweat and exertion drown out the noise. Outwork the noise. -Justin Spoon Outwork the noise means something different for each of us. Robyn Spoon, Elevate Founder shares what this meant to Justin, and what it means to...

A Son, Brother, Collegiate Runner and Asbury Graduate Diagnosed with Rhabdomyosarcoma

by ElevateAdmin | July 23, 2024 | Advocacy, Elevate News, Rhabdo Workgroup | 0 Comments

"Today, you don't have to do something special. You don't have to do anything amazing or overwhelming. You just gotta get of bed and do something." - Justin Spoon - A mother's share: Sitting in a small Lexington, Kentucky clinic room with my then 21-year-old...

Ewings Sarcoma Mom Shares

by ElevateAdmin | July 15, 2024 | Advocacy, Elevate News, Get involved/Volunteer | 0 Comments

"Her diagnosis story is probably best classified as ‘trust your gut and ask for the extra tests’." - Aimee Formo, Ewings Sarcoma Survivor's mom & Childhood Cancer AdvocateGuest Blog by: Aimee Formo Ewings sarcoma, also abbreviated EWS, is an aggressive type...

Rhabdomyosarcoma: A Bereaved Mom Shares

by ElevateAdmin | July 11, 2024 | Advocacy, Elevate News, Rhabdo Workgroup | 0 Comments

Guest Blog by: Cindy Cleveland Matt Cleveland 2/5/1997-3/8/2023 "From the time Matthew was little, he could most frequently be found playing baseball," Matthew's mom Cindy shares with Elevate. "His love for the game started with T-Ball at the age of 4, continued...

First Look: Parents Share How They First Discovered Their Child Had Rhabdomyosarcoma

by ElevateAdmin | July 8, 2024 | Advocacy, Elevate Kids, Elevate News, Research, Rhabdo Workgroup | 0 Comments

"A small, relatively painless lump near his left nostril had a name- Rhabdomyosarcoma" - Robyn Spoon, Elevate CEO & Founder "Rhabdomyosarcoma is rare, with only about 500 total diagnoses in the US each year and only a small percentage of those above the age...