by ElevateAdmin | Jan 2, 2025 | Advocacy, Federal, Research
Conflict in Congress A Call to Action in 2025 “One of the most devastating things about this legislative mess is that some of these bills in this package had no fiscal attached, meaning they weren’t going to cost taxpayers a dime!” –...
by ElevateAdmin | Oct 25, 2024 | Advocacy, Elevate News, Federal, Get involved/Volunteer, Research, State
Advocating at the FDA ELEVATE at the FDA ” “Making more drugs available to kids with cancer means solving a million small problems. Yesterday’s event provided a necessary opportunity to bring more and more of those problems to light. If we can...
by ElevateAdmin | Sep 4, 2024 | Advocacy, Elevate News, Get involved/Volunteer
What does this mean to you? Outwork the Noise Don’t listen to those voices. Let your hard work, sweat and exertion drown out the noise. Outwork the noise. -Justin Spoon Outwork the noise means something different for each of us. Robyn Spoon, Elevate Founder shares...
by ElevateAdmin | Jul 23, 2024 | Advocacy, Elevate News, Rhabdo Workgroup
Justin Spoon A Son, Brother, Collegiate Runner, and Asbury Graduate Diagnosed with Rhabdomyosarcoma “Today, you don’t have to do something special. You don’t have to do anything amazing or overwhelming. You just gotta get of bed and do...
by ElevateAdmin | Jul 15, 2024 | Advocacy, Elevate News, Get involved/Volunteer
The Formo Family and Ewings Sarcoma Ewings Sarcoma: A Survivor's Mom Shares “Her diagnosis story is probably best classified as ‘trust your gut and ask for the extra tests’.” – Aimee Formo, Ewings Sarcoma Survivor’s mom & Childhood...
by ElevateAdmin | Jul 11, 2024 | Advocacy, Elevate News, Rhabdo Workgroup
The Cleveland Family and Rhabdomyosarcoma Rhabdomyosarcoma: A Bereaved Mom Shares Guest Blog by: Cindy Cleveland Matt Cleveland 2/5/1997-3/8/2023 “From the time Matthew was little, he could most frequently be found playing baseball,” Matthew’s mom...