Webinars, Podcasts & Resources

Webinars

    In this exclusive Elevate Childhood Cancer Research & Advocacy webinar, You Have Permission For a Second Opinion, we empower you to understand that there is ‘no wrong reason to seek a second opinion.’

     Andrea Lutes, RN, BSN, CPHON shares her expertise alongside three childhood cancer advocates who pursued second opinions for their own children diagnosed with rhabdomyosarcoma. Through these personal journeys, you’ll gain valuable insights and become a stronger advocate for yourself and loved ones.

    Andrea is joined by Jessica Messer, Founder of the Winking Warrior Foundation [HERE] that was created in honor of her own son, Bennett, as a way for their family to give back. Natalie Steuer, childhood cancer advocate and mom to Elevate kid, Sage joins the conversation with her own families experience, alongside Robyn Spoon, Elevate CEO & Founder.  

    Don’t miss this opportunity to deepen your knowledge and confidence in making the best decisions in your own or your child’s care!

    In this NEW Elevate Childhood Cancer Research & Advocacy webinar, Understanding the Genetic Puzzle of Wilms Tumor, Joyce Turner, Genetic Director of the Cancer Genetics Program at Children’s National in D.C. provides invaluable insight into what genetic testing really is, whether it’s happening at your hospital after a Wilms tumor diagnosis, and how all caregivers can ensure that children remain at the center of their care.

    Members of our Elevate Wilms workgroup including Miriam Weiss, MD, a retired physician, nephrologist, and grandmother to a Wilms tumor survivor, Courtney Comer, MTS, BSN, RN, mother to a 2x pediatric cancer survivor and rare disease patient came together with Joyce to ask thoughtful questions, leading to an incredible discussion on why understanding both your child’s and the tumor’s genetic makeup is so important. Erin Abbott, mother to Elevate kid Wyatt, a Stage IV Wilms survivor and Robyn Spoon, Elevate CEO & Founder also join the conversation to break it all down into clear, actionable information that can help families and advocates at every stage.

 

    This is a must-watch—not just for those facing Wilms tumor and other renal tumors but for anyone navigating childhood cancer.

Understanding the Genetic Puzzle of Wilms Tumor

Genetics Overview

Genetic Counselors

Genetic Testing

Genes

DNA & RNA

Transcription

Protein Synthesis

Germline vs. Somatic Gene

Two-Hit Hypothesis

Red Flags for WT Genetic Syndromes

Red Flags for WT Genetic Syndromes

Genetic Testing Decision

Case Examples

Case Examples

Case Examples

Genetic Testing Strategies

Methylation Testing on Tumor

New Tech & RNA Sequencing

Future Directions

Genetic Testing Strategy

Contact Joyce Turner Here

Download the slides from ‘Understandig the Genetic Puzzle of Wilms Tumor’ below:

Wilms-Tumor-and-Genetics.pptx.pdf

Second Opinion Grants and/or Family Financial Support

 

 

Rhabdomyosarcoma

Winking Warrior  (Click HERE)

Grants for Clinical Trials for Sarcoma

Jordan’s Dream Fund for Clinical Trials (Click HERE

Wilms tumor/Kidney Cancer

Joey’s Wings  (Click HERE)

 

 



Kidney Cancer Financial Assistance

through the Kidney Cancer Association

Podcasts

Educational Resources

Our Amazing Kidneys

       

  Learn more on the function and structure of our kidneys!

   Download Our-Amazing-Kidneys-.pdf today!

 

        Miriam F Weiss, MD, retired nephrologist and Wilms’ grandmother 

@2023 ELEVATE Childhood Cancer Research
and Advocacy, Inc.
is a registered 501(c)(3) non-profit organization.
EIN: 93-2185372

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