by ElevateAdmin | Mar 13, 2025 | Advocacy, Elevate Kids, Elevate News, Fundraisers, Research
The Day Everything Changed Understanding Diagnosis, Treatment, and the Impact During Kidney Cancer Awareness Month “On November 26th, 2023, I took Paislee to the emergency room, where she was admitted for high levels of calcium. Two days later, while changing...
by ElevateAdmin | Mar 10, 2025 | Advocacy, Elevate Kids, Federal, Fundraisers, Research, State, Wilms Workgroup
RO1 Grants and Wilms Tumor Research A Decade of Setbacks and Why These Critical Funding Gaps Matter Here’s the heartbreaking reality: Wilms tumor, the most common abdominal childhood cancer & most common tumor affecting the kidneys, hasn’t received an R01 grant in...
by ElevateAdmin | Mar 5, 2025 | Advocacy, Research, Wilms Workgroup
Sharing the Experience The Genetic Predisposition Clinic “Ralphie’s nine-year-old sister was not identified as having a cancer predisposition syndrome until after she had been diagnosed with cancer, Wilms tumor, twice. By that time cancer filled her little body,...
by ElevateAdmin | Jan 2, 2025 | Advocacy, Federal, Research
Conflict in Congress A Call to Action in 2025 “One of the most devastating things about this legislative mess is that some of these bills in this package had no fiscal attached, meaning they weren’t going to cost taxpayers a dime!” –...
by ElevateAdmin | Oct 25, 2024 | Advocacy, Elevate News, Federal, Get involved/Volunteer, Research, State
Advocating at the FDA ELEVATE at the FDA ” “Making more drugs available to kids with cancer means solving a million small problems. Yesterday’s event provided a necessary opportunity to bring more and more of those problems to light. If we can...
by ElevateAdmin | Jul 8, 2024 | Advocacy, Elevate Kids, Elevate News, Research, Rhabdo Workgroup
Sarcoma Awareness Month First Look: Parents Share How they 1st Discovered their Child had Rhabdomyosarcoma “A small, relatively painless lump near his left nostril had a name- Rhabdomyosarcoma” – Robyn Spoon, Elevate CEO & Founder ...
