by ElevateAdmin | Oct 25, 2024 | Advocacy, Elevate News, Federal, Get involved/Volunteer, Research, State
Advocating at the FDA ELEVATE at the FDA ” “Making more drugs available to kids with cancer means solving a million small problems. Yesterday’s event provided a necessary opportunity to bring more and more of those problems to light. If we can...
by ElevateAdmin | Sep 11, 2024 | Elevate News, Fundraisers, Get involved/Volunteer
A Pearl Tatum and Maisie Moving Mountains: One Family's Experience with Rhabdomyosarcoma “The challenges of being a pediatric cancer family are innumerable. Every time you think you’ve found the worst thing, something else rears its ugly head. These past few...
by ElevateAdmin | Jul 23, 2024 | Advocacy, Elevate News, Rhabdo Workgroup
Justin Spoon A Son, Brother, Collegiate Runner, and Asbury Graduate Diagnosed with Rhabdomyosarcoma “Today, you don’t have to do something special. You don’t have to do anything amazing or overwhelming. You just gotta get of bed and do...
by ElevateAdmin | Jul 15, 2024 | Advocacy, Elevate News, Get involved/Volunteer
The Formo Family and Ewings Sarcoma Ewings Sarcoma: A Survivor's Mom Shares “Her diagnosis story is probably best classified as ‘trust your gut and ask for the extra tests’.” – Aimee Formo, Ewings Sarcoma Survivor’s mom & Childhood...
by ElevateAdmin | Jul 11, 2024 | Advocacy, Elevate News, Rhabdo Workgroup
The Cleveland Family and Rhabdomyosarcoma Rhabdomyosarcoma: A Bereaved Mom Shares Guest Blog by: Cindy Cleveland Matt Cleveland 2/5/1997-3/8/2023 “From the time Matthew was little, he could most frequently be found playing baseball,” Matthew’s mom...
by ElevateAdmin | Jul 8, 2024 | Advocacy, Elevate Kids, Elevate News, Research, Rhabdo Workgroup
Sarcoma Awareness Month First Look: Parents Share How they 1st Discovered their Child had Rhabdomyosarcoma “A small, relatively painless lump near his left nostril had a name- Rhabdomyosarcoma” – Robyn Spoon, Elevate CEO & Founder ...
