by ElevateAdmin | Jul 23, 2024 | Advocacy, Elevate News, Rhabdo Workgroup
Justin Spoon A Son, Brother, Collegiate Runner, and Asbury Graduate Diagnosed with Rhabdomyosarcoma “Today, you don’t have to do something special. You don’t have to do anything amazing or overwhelming. You just gotta get of bed and do...
by ElevateAdmin | Jul 15, 2024 | Advocacy, Elevate News, Get involved/Volunteer
The Formo Family and Ewings Sarcoma Ewings Sarcoma: A Survivor's Mom Shares “Her diagnosis story is probably best classified as ‘trust your gut and ask for the extra tests’.” – Aimee Formo, Ewings Sarcoma Survivor’s mom & Childhood...
by ElevateAdmin | Jul 11, 2024 | Advocacy, Elevate News, Rhabdo Workgroup
The Cleveland Family and Rhabdomyosarcoma Rhabdomyosarcoma: A Bereaved Mom Shares Guest Blog by: Cindy Cleveland Matt Cleveland 2/5/1997-3/8/2023 “From the time Matthew was little, he could most frequently be found playing baseball,” Matthew’s mom...
by ElevateAdmin | Jul 8, 2024 | Advocacy, Elevate Kids, Elevate News, Research, Rhabdo Workgroup
Sarcoma Awareness Month First Look: Parents Share How they 1st Discovered their Child had Rhabdomyosarcoma “A small, relatively painless lump near his left nostril had a name- Rhabdomyosarcoma” – Robyn Spoon, Elevate CEO & Founder ...
by ElevateAdmin | Jun 27, 2024 | Advocacy, Elevate News, Research, Wilms Workgroup
Elevate Wilms Multi-Stakeholder Engagement for Wilms tumor that puts Children in the Center “Organizing ideas for presentation is one of the best ways to learn. What we learn we can teach. I learned a new concept through working on the poster—design thinking. And...
by ElevateAdmin | Jun 18, 2024 | Advocacy, Elevate News, Federal, Research, Wilms Workgroup
Elevate Wilms 12th International Pediatric Renal Tumors Biology Meeting “Five years ago I was sitting across from the oncologists, today, I sit with them.” – C. Comer MTS, BSN, RN, Mike Ortiz, MD and Robyn Spoon, Elevate CEO Great...
