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Rhabdoid Tumors: Understanding Diagnosis, Treatment, and the Impact During Kidney Cancer Awareness Month

by ElevateAdmin | March 13, 2025 | Advocacy, Elevate Kids, Elevate News, Fundraisers, Research | 0 Comments

"On November 26th, 2023, I took Paislee to the emergency room, where she was admitted for high levels of calcium. Two days later, while changing Paislee's diaper, I felt a hard lump on the lower right side (her left side) of her abdomen and called for help."...

R01 Grants and Wilms Tumor Research: A Decade of Setbacks and Why These Critical Funding Gaps Matter

by ElevateAdmin | March 10, 2025 | Advocacy, Elevate Kids, Federal, Fundraisers, Research, State, Wilms Workgroup | 0 Comments

Here’s the heartbreaking reality: Wilms tumor, the most common abdominal childhood cancer & most common tumor affecting the kidneys, hasn’t received an R01 grant in over 10 years. Every child deserves the best chance at a future, and research is how we get there....

Sharing The Experience: The Genetic Predisposition Clinic

by ElevateAdmin | March 5, 2025 | Advocacy, Research, Wilms Workgroup | 0 Comments

"Ralphie’s nine-year-old sister was not identified as having a cancer predisposition syndrome until after she had been diagnosed with cancer, Wilms tumor, twice. By that time cancer filled her little body, displacing her liver, traveling throughout her abdomen,...

Ewings Sarcoma Survivor’s Mom Shares Why Blood Donations Matter

by ElevateAdmin | January 12, 2025 | Elevate News, Get involved/Volunteer | 0 Comments

"I started donating blood when I was in high school, in a probably ill-advised scheme to work past my fear of needles." - Aimee Formo Aimee, an incredibly well-versed and passionate childhood cancer mom and advocate currently residing in Indiana, shares with...

Call to Action in 2025

by ElevateAdmin | January 2, 2025 | Advocacy, Federal, Research | 0 Comments

"One of the most devastating things about this legislative mess is that some of these bills in this package had no fiscal attached, meaning they weren't going to cost taxpayers a dime!" - Robyn Spoon, Elevate CEO & FounderHere is the site that we...

ELEVATE at the FDA

by ElevateAdmin | October 25, 2024 | Advocacy, Elevate News, Federal, Get involved/Volunteer, Research, State | 0 Comments

" "Making more drugs available to kids with cancer means solving a million small problems. Yesterday’s event provided a necessary opportunity to bring more and more of those problems to light. If we can identify the problems, name the problems, then we can...

Tatum and Maisie Moving Mountains

by ElevateAdmin | September 11, 2024 | Elevate News, Fundraisers, Get involved/Volunteer | 0 Comments

"The challenges of being a pediatric cancer family are innumerable. Every time you think you’ve found the worst thing, something else rears its ugly head. These past few weeks we’ve witnessed a hefty serving of that humanity, led by two young girls, Tatum Pillor and...

Outwork the Noise

by ElevateAdmin | September 4, 2024 | Advocacy, Elevate News, Get involved/Volunteer | 0 Comments

Don’t listen to those voices. Let your hard work, sweat and exertion drown out the noise. Outwork the noise. -Justin Spoon Outwork the noise means something different for each of us. Robyn Spoon, Elevate Founder shares what this meant to Justin, and what it means to...

A Son, Brother, Collegiate Runner and Asbury Graduate Diagnosed with Rhabdomyosarcoma

by ElevateAdmin | July 23, 2024 | Advocacy, Elevate News, Rhabdo Workgroup | 0 Comments

"Today, you don't have to do something special. You don't have to do anything amazing or overwhelming. You just gotta get of bed and do something." - Justin Spoon - A mother's share: Sitting in a small Lexington, Kentucky clinic room with my then 21-year-old...

Ewings Sarcoma Mom Shares

by ElevateAdmin | July 15, 2024 | Advocacy, Elevate News, Get involved/Volunteer | 0 Comments

"Her diagnosis story is probably best classified as ‘trust your gut and ask for the extra tests’." - Aimee Formo, Ewings Sarcoma Survivor's mom & Childhood Cancer AdvocateGuest Blog by: Aimee Formo Ewings sarcoma, also abbreviated EWS, is an aggressive type...

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Elevate Highlights Newsletter January 2024