“I started donating blood when I was in high school, in a probably ill-advised scheme to work past my fear of needles. ” -Aimee Formo
   
   

Why do kids undergoing cancer treatment need Blood?

Hear firsthand from a parent/advocate below!

 
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      Aimee, an incredibly well-versed and passionate childhood cancer mom and advocate currently residing in Indiana, shares with Elevate why donating blood matters and how it became a lifeline for her daughter, Leanor while undergoing treatment for Ewings Sarcoma.
 
   “I got out of the habit after studying abroad, because being in the UK in proximity to the Mad Cow years meant I couldn’t donate for quite a long time.  I recommitted to donating regularly after Leanor was diagnosed with Ewings Sarcoma.”
   ________________________
   
   Ewings Sarcoma is a type of cancer that primarily affects  children and young adults. It begins as a growth of cells in the bones and the soft tissue around the bones.
Learn more HERE.
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    “Count-related delays were a constant for us throughout Lea’s treatment.” Aimee continues, “We rarely saw any of the tell-tale symptoms of low hemoglobin, but even a gentle hug left her bruised if her platelets were low.”

[Read Elevate’s Building Bridges Blog post, ‘Why Blood Donations Matter to those with Childhood Cancer’ to learn more about blood and donations!]

   

________________________

    “She was surprisingly zen about the frequent transfusions, which were delivered through her port (port access was a process for which we had a very solid distraction routine).  Neutropenia left her in a mild panicEven now, some two years later, she gets anxious taking her temperature. 

   

Leanor explains how she felt about this back in 2021,

If I have to go in for a fever, I’m like, ‘No!!!!’

   When I have a fever, I have to have a poke in my arm in the Emergency Room.  It’s really uncomfortable, even *if* I have magic cream.  And sometimes I jump and it comes out, which makes them have to poke multiple times.

   Blood donation is a free and relatively simple way to help pediatric cancer patients.  Leanor made so very many withdrawals from the blood bank during treatment that I lost countBraving a big needle seemed like the least I could do when she was suffering through near-daily pokes.  I continue to donate because I know that until we find novel treatments that don’t interfere with the work of the bone marrow, there are unfortunately always going to be kids locally who need my universal donorplatelets and red cells.”
     
   
Blood Donation Insider Tip:
    “I have my own poke routine.  I always put my gold awareness swag on, say a little prayer that my iron levels pass muster on my way to Versiti, and listen to Leanor’s Positive Playlist (a playlist we crowdsourced for her during treatment) during the donation.” -Aimee, Leanor’s mom, blood donor

 

   Leanor celebrated 2 years NED (no evidence of disease) in the fall of 2023 and she is currently living life post-treatment with zero mobility restrictionsManaging her anxiety, especially the medical anxiety, is a constant workinprogress, but she continues to do well academically and socially.  She returned to ballet class after her second long hiatus last fall, she’s a proud member of her school’s choir, and an active Junior Girl Scout.

Photography by the talented Haley Birdwell

**These facts are provided by the Blood Connection; tap HERE to find a location near you or visit American Red Cross for more options to begin helping childhood cancer patients in desperate need of blood products during and sometimes, even after treatment.

***Many new laws have come into effect this last year, so if you were ineligible before, please take a moment to check again HERE. You may now qualify!

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