Rhabdoid Tumors: Understanding Diagnosis, Treatment, and the Impact During Kidney Cancer Awareness Month

by ElevateAdmin | Mar 13, 2025 | Advocacy, Elevate Kids, Elevate News, Fundraisers, Research

The Day Everything Changed Understanding Diagnosis, Treatment, and the Impact During Kidney Cancer Awareness Month    “On November 26th, 2023, I took Paislee to the emergency room, where she was admitted for high levels of calcium. Two days later, while changing...

R01 Grants and Wilms Tumor Research: A Decade of Setbacks and Why These Critical Funding Gaps Matter

by ElevateAdmin | Mar 10, 2025 | Advocacy, Elevate Kids, Federal, Fundraisers, Research, State, Wilms Workgroup

RO1 Grants and Wilms Tumor Research A Decade of Setbacks and Why These Critical Funding Gaps Matter Here’s the heartbreaking reality: Wilms tumor, the most common abdominal childhood cancer & most common tumor affecting the kidneys, hasn’t received an R01 grant in...

Sharing The Experience: The Genetic Predisposition Clinic

by ElevateAdmin | Mar 5, 2025 | Advocacy, Research, Wilms Workgroup

Sharing the Experience The Genetic Predisposition Clinic “Ralphie’s nine-year-old sister was not identified as having a cancer predisposition syndrome until after she had been diagnosed with cancer, Wilms tumor, twice. By that time cancer filled her little body,...

Ewings Sarcoma Survivor’s Mom Shares Why Blood Donations Matter

by ElevateAdmin | Jan 12, 2025 | Elevate News, Get involved/Volunteer

Donating Blood Ewings Sarcoma Survivor's Mom Shares Why Blood Donations Matter “I started donating blood when I was in high school, in a probably ill-advised scheme to work past my fear of needles.” – Aimee Formo     Aimee, an incredibly well-versed...

ELEVATE at the FDA

by ElevateAdmin | Oct 25, 2024 | Advocacy, Elevate News, Federal, Get involved/Volunteer, Research, State

Advocating at the FDA ELEVATE at the FDA   ”      “Making more drugs available to kids with cancer means solving a million small problems. Yesterday’s event provided a necessary opportunity to bring more and more of those problems to light. If we can...

Tatum and Maisie Moving Mountains

by ElevateAdmin | Sep 11, 2024 | Elevate News, Fundraisers, Get involved/Volunteer

A Pearl Tatum and Maisie Moving Mountains “The challenges of being a pediatric cancer family are innumerable. Every time you think you’ve found the worst thing, something else rears its ugly head. These past few weeks we’ve witnessed a hefty serving of that...